Day 957 – October 30, 2024

Day 957 – October 30, 2024

Happy birthday, Harvey!! Seven years of you: Each one a gift. Remember the mountains you’ve conquered and always seek the wonders ahead. Inspiration holds its breath to see what you’ll do next. Here’s a look back at your fight, your reclaimed remission, and the joy you’ve brought into our lives this past year: Last year on October 30th, Harvey’s birthday…

Day 816 – June 11, 2024

Day 816 – June 11, 2024

This afternoon, we received Harvey’s cancer tests results from last week’s bone marrow biopsy, spinal tap, and labs in Philadelphia: Our boy is officially 6 months cancer-free!! What a momentous day and a huge milestone! There were no detectable cancer cells in his bone marrow, spinal fluid, nor blood. There continues to be no B cells in his blood (which…

Day 756 – April 12, 2024

Day 756 – April 12, 2024

April has brought more great news for Harvey & our family: Blood samples collected during his clinic appointment on Tuesday (April 9th) revealed that he continues to possess no b cells. In other words, the T cells he received in December continue to keep our boy in remission! We’re immensely relieved, excited, and grateful. Yet, always cautiously optimistic and living…

Day 738 – March 25, 2024

Day 738 – March 25, 2024

We’ve received all the test results back from Harvey’s bone marrow biopsy, MRI, and labs taken 2 weeks ago at the Children’s Hospital of Philadelphia. Here is what excellent news looks like: Harvey’s latest ClonoSEQ test results show no evidence of cancer in his bone marrow 3 months after receiving his CAR T treatment! There continues to be no detectable…

Day 731 – March 18th, 2024

Day 731 – March 18th, 2024

Two years. Two years ago today, Harvey received his cancer diagnosis. Last year at this time, he had 2 years of treatment remaining and was in remission. (At least that’s what we assumed.) What a difference a year can bring. What an incredibly different perspective we now have, yet again! A year ago, we thought Harvey had found his permanent…

Day 724 – March 11, 2024

Day 724 – March 11, 2024

It’s been over a month since our last update. Hopefully you know why: Harvey has been doing well! We are so incredibly blessed to share that we’ve been offline and enjoying life since then. This morning, Harvey and Lindsey flew back to Philadelphia for his 3 month post CAR-T therapy appointment. He has a big day tomorrow with a brain…

Day 679 – January 26, 2024

Day 679 – January 26, 2024

Harvey is in remission!!! At 4 pm CST today, we received a call from the Children’s Hospital of Philadelphia. His medical team informed us that his ClonoSEQ test results (the most sensitive and thorough cancer test available) show no detectable cancer in his body: He is MRD negative!! We are celebrating, taking in all the feelings of this long-awaited moment….

Day 676 – January 23, 2024

Day 676 – January 23, 2024

We’re home!! After 6 weeks in Philadelphia, our flight into Minneapolis touched down at 12:46pm on Friday, January 19th and we arrived in our driveway an hour later. Hattie wrapped her arms around Harvey at the front door and said “Harvey, my baby brother! I missed you!!” We are so happy to be together as a family again! The kids…

Day 664 – January 11, 2024

Day 664 – January 11, 2024

Being cautiously optimistic, we’ve been hesitant to write an update describing how well Harvey has been doing. We’re officially in “wait and see” mode – waiting to see if CAR T therapy is the answer for Harvey’s leukemia. It’s certainly a weighted wait. He seems to have a higher temperature during the daytime, between 99.5º F. and 100º F., but…

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