9:00 pm: On Thursday (Day 6), our Mayo Clinic family delivered an amazing care package for Harvey and our family. All items neatly packaged in a rolling dinosaur suitcase with each pocket/compartment containing a different, extremely thoughtful surprise for us. Thank you all so much!! It’s hard to find the words to express our gratitude, so I’m hoping video will…
6:50 pm: So thankful that Lindsey is able to return home this evening and spend time with Hattie & Henry. I hope she’s able to stay at our home tonight and get a good night of restful sleep. If you’re reading this, Lindsey, please get some sleep! Harvey and I are holding down the fort just fine. 🙂 Harvey has…
9:50 pm: We have a new port-a-cath placed. He’s such a champ. So big and brave even though we could tell how nervous he was during the replacement. Bedtime for us. Goodnight! 8:50 pm: A bit of an eventful evening. Harvey’s port-a-cath tubing developed a leak in the line, and we’re in the process of getting a new one placed….
10:30 pm: I arrived back at the hospital just in time to catch Harvey waking up, eating, chatting casually about anything that comes to his mind, and sharing his secrets with me. He took me for a walk to show where they “hide” all the good snacks around this joint. His stomach is full and my heart is full. He…
8:30 pm: Harvey continues to lose his energy and strength (as planned) as the effects of his treatment are in full force. He wakes up and is active for a few minutes at a time, then asks to return to bed shortly thereafter. The next big treatment for him will occur on Friday, March 25th. I will post updates as…
10:50 pm: All things considered: Today was a really great day. We learned two very important things. 1. Harvey’s body is responding to the treatments favorably and as expected thus far. If I pretend like I know what I’m talking about for just a moment, I recall hearing that some of the proteins found (around one of the types of…
10:30 pm: Chemotherapy and the concoction of medications Harvey is receiving has unquestionably impacted his energy and mood. Our cuddly, active, loving boy is being overcome with feelings of restlessness, longing for home & siblings, and anxious to get back outside. Back to school and swimming lessons. Back to normal. We continue to monitor his SpO2 levels and his slight…
7:00 pm: From Harvey’s perspective, this wasn’t a bad day. After his chemotherapy, he was up and moving, making visits to the playroom, exploring every inch of hallways on our floor, and finding out where all the snacks are stored. He took a much needed nap at 5 pm, and was up and ready for supper at 6:30 pm. Thank…
March 18th, 2022 started like any normal day for Harvey and ended with him undergoing emergency surgery and being diagnosed with high risk Philadelphia-like b-cell acute lymphoblastic leukemia. The symptoms that prompted his visit to the clinic were a fever and rash, but we quickly learned he was deteriorating internally with 95% of the cells in his blood becoming cancerous….
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