10:30 pm: I arrived back at the hospital just in time to catch Harvey waking up, eating, chatting casually about anything that comes to his mind, and sharing his secrets with me. He took me for a walk to show where they “hide” all the good snacks around this joint. His stomach is full and my heart is full. He…
8:30 pm: Harvey continues to lose his energy and strength (as planned) as the effects of his treatment are in full force. He wakes up and is active for a few minutes at a time, then asks to return to bed shortly thereafter. The next big treatment for him will occur on Friday, March 25th. I will post updates as…
10:50 pm: All things considered: Today was a really great day. We learned two very important things. 1. Harvey’s body is responding to the treatments favorably and as expected thus far. If I pretend like I know what I’m talking about for just a moment, I recall hearing that some of the proteins found (around one of the types of…
10:30 pm: Chemotherapy and the concoction of medications Harvey is receiving has unquestionably impacted his energy and mood. Our cuddly, active, loving boy is being overcome with feelings of restlessness, longing for home & siblings, and anxious to get back outside. Back to school and swimming lessons. Back to normal. We continue to monitor his SpO2 levels and his slight…
7:00 pm: From Harvey’s perspective, this wasn’t a bad day. After his chemotherapy, he was up and moving, making visits to the playroom, exploring every inch of hallways on our floor, and finding out where all the snacks are stored. He took a much needed nap at 5 pm, and was up and ready for supper at 6:30 pm. Thank…
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