April has brought more great news for Harvey & our family: Blood samples collected during his clinic appointment on Tuesday (April 9th) revealed that he continues to possess no b cells. In other words, the T cells he received in December continue to keep our boy in remission! We’re immensely relieved, excited, and grateful. Yet, always cautiously optimistic and living…
We’ve received all the test results back from Harvey’s bone marrow biopsy, MRI, and labs taken 2 weeks ago at the Children’s Hospital of Philadelphia. Here is what excellent news looks like: Harvey’s latest ClonoSEQ test results show no evidence of cancer in his bone marrow 3 months after receiving his CAR T treatment! There continues to be no detectable…
Two years. Two years ago today, Harvey received his cancer diagnosis. Last year at this time, he had 2 years of treatment remaining and was in remission. (At least that’s what we assumed.) What a difference a year can bring. What an incredibly different perspective we now have, yet again! A year ago, we thought Harvey had found his permanent…
It’s been over a month since our last update. Hopefully you know why: Harvey has been doing well! We are so incredibly blessed to share that we’ve been offline and enjoying life since then. This morning, Harvey and Lindsey flew back to Philadelphia for his 3 month post CAR-T therapy appointment. He has a big day tomorrow with a brain…
Harvey is in remission!!! At 4 pm CST today, we received a call from the Children’s Hospital of Philadelphia. His medical team informed us that his ClonoSEQ test results (the most sensitive and thorough cancer test available) show no detectable cancer in his body: He is MRD negative!! We are celebrating, taking in all the feelings of this long-awaited moment….
We’re home!! After 6 weeks in Philadelphia, our flight into Minneapolis touched down at 12:46pm on Friday, January 19th and we arrived in our driveway an hour later. Hattie wrapped her arms around Harvey at the front door and said “Harvey, my baby brother! I missed you!!” We are so happy to be together as a family again! The kids…
Being cautiously optimistic, we’ve been hesitant to write an update describing how well Harvey has been doing. We’re officially in “wait and see” mode – waiting to see if CAR T therapy is the answer for Harvey’s leukemia. It’s certainly a weighted wait. He seems to have a higher temperature during the daytime, between 99.5º F. and 100º F., but…
It’s been nearly 3 days since our last update and it’s been wonderfully quiet here in Philly! We’ve been taking a break to recover emotionally, mentally, and physically. Harvey was discharged from the hospital on Thursday afternoon (Dec. 28th) and we’ve since been quarantined in our room at the Ronald McDonald House. He remains at risk for infection with his…
We’re so blessed to share that Harvey’s side effects from CAR T therapy continue to resolve. His voice has returned (music to our ears!) and most of the harsh neurological symptoms have tapered off or disappeared completely. What a relief! He remains a bit unsteady on his feet, but we’re hoping that improves over the coming days. He’s feeling well,…
We want to assume – truthfully, we need to assume – that we’ve seen the darkest hours of this journey. As his parents, the past 2 days of trials and tribulations made us question everything. How could we allow this to happen to our boy? Did we make the right decision to pursue CAR T? As the first light of…
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