3:15 pm: Harvey’s third (and second) day in the hospital have been quiet and all is well. The boy is happy, entertained, and having no side effects (except frequent trips to the bathroom from all the chemotherapy and liquids being pushed into his port). He finished his high dose methotrexate infusion at 3 pm yesterday and his body has been…
10:00 pm: Thank you so much for your comments of love & support today – We love sharing them with Harvey while he’s going through treatment! ❤️ He had a few rounds of vomiting late morning and early afternoon, but otherwise everything has been going well. He is currently receiving a continuous 22 hour infusion of methotrexate and will be…
9:30 pm: The past week has been a blur. Harvey made it through his first round of rylaze injections, receiving his last on Wednesday, July 6th (8 shots total over 2 weeks). It was rough. He lost over 2 pounds from vomiting and lack of appetite. He either couldn’t sleep due to nausea or exclusively slept the days he was…
11:30 pm: A sleepless night is underway for Harvey with bouts of vomiting followed by acute, short-lived migraines in one to two hour intervals. After throwing up, he immediately grabs his head and cries from migraine pain for 10-20 seconds. (His care team believes this is due to blood pressure spikes while vomiting, enhanced by his low red blood cell…
7:00 pm: 100 days. It’s been 100 days since Harvey’s cancer diagnosis. It feels longer than that. Yet, it also feels like no time at all compared to the road that lies ahead. I’m glancing at Harvey as I type these words. He’s across the room playing with his train set. His cute, bald head, pale skin, bruises, and leg…
9:30 pm: We’re home! I’m practically running around singing it! 🙂 Harvey’s lab results showed his white blood cell count and ANC (immune system) have both dropped, likely due to chemotherapy. However, everything else looks good. At least good enough to go home! Our boy had a very long day and is just catching up on the lunch and dinner…
11:00 pm: A brief update to share that we’ve had a quiet, yet busy week at home. Harvey will begin receiving the first of numerous rounds of rylaze shots tomorrow, June 24th. He’ll also soon begin his next round of aggressive cancer treatment, including scheduled hospitalizations. I’ll post a much more detailed entry in the coming days about what Harvey’s…
7:30 pm: We’re all back at home and ready to celebrate sunset. We hope for less days like today. Harvey had a full-blown allergic reaction to his pegaspargase chemotherapy. It started with Lindsey noticing red spots developing on his ears, then hives on his nose, followed by the swelling of his entire face. He then signaled that the swelling was…
11:30 pm: We’ve taken a brief hiatus in site updates as it’s remained quiet around here. To be clear, not quiet as in “silent.” Medically quiet. Harvey has been doing well. He is now solidly in the second week of the second half of the second stage of cancer treatment. Easy to follow, right? 🙂 Simply put, he’s started his…
10:00 pm: Harvey’s clinic visit for chemotherapy today was apparently the first stop on his stand-up comedy tour! We love our little comedian. Chemotherapy really wore him out. Within an hour of receiving his cytoxan and ARA-C, he was an entirely different kid. His agility, energy, alertness, focus: Gone. He’s also returned to his daily oral chemotherapy regimen at home….
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