8:45 pm: Harvey is asleep for the night (hopefully). After his “worst shower ever,” we made some popcorn and watched “The Polar Express.” Another one of his favorite movies! (If you’ve ever watched the movie, you might be a little creeped out by the animation. It has to do with the uncanny valley theory, where a high amount of realism…
5:00 pm: Speaking honestly, it’s been a really hard day. We met with Dr. Miller and nurse practitioner Julie late this morning and learned that Harvey’s initial genetic testing results arrived. I’m going to be as concise and (hopefully) accurate as possible with the overwhelming amount of information we received. Indications are that Harvey has Philadelphia-like acute lymphoblastic leukemia (Ph-like…
8:00 pm: Harvey had a low-energy day. We attempted to go for a walk a few times, but his knees are starting to hurt and we’re having to carry him most of the way. This pain is to be expected with the chemotherapy drugs he’s receiving. He even turned down visiting the playroom (which he loves!). Nurse practitioner Julie stopped…
10:00 pm: Lindsey spent the afternoon and evening with Harvey while I ran home to see Henry and Hattie. Grandma and grandpa Goldade had been their caretakers since Harvey’s diagnosis on March 18th. We said goodbye to them today and welcomed our family friends, the Bisbeys. Hattie was so excited to play with her friends, she actually told me to…
9:00 pm: On Thursday (Day 6), our Mayo Clinic family delivered an amazing care package for Harvey and our family. All items neatly packaged in a rolling dinosaur suitcase with each pocket/compartment containing a different, extremely thoughtful surprise for us. Thank you all so much!! It’s hard to find the words to express our gratitude, so I’m hoping video will…
6:50 pm: So thankful that Lindsey is able to return home this evening and spend time with Hattie & Henry. I hope she’s able to stay at our home tonight and get a good night of restful sleep. If you’re reading this, Lindsey, please get some sleep! Harvey and I are holding down the fort just fine. 🙂 Harvey has…
9:50 pm: We have a new port-a-cath placed. He’s such a champ. So big and brave even though we could tell how nervous he was during the replacement. Bedtime for us. Goodnight! 8:50 pm: A bit of an eventful evening. Harvey’s port-a-cath tubing developed a leak in the line, and we’re in the process of getting a new one placed….
10:30 pm: I arrived back at the hospital just in time to catch Harvey waking up, eating, chatting casually about anything that comes to his mind, and sharing his secrets with me. He took me for a walk to show where they “hide” all the good snacks around this joint. His stomach is full and my heart is full. He…
8:30 pm: Harvey continues to lose his energy and strength (as planned) as the effects of his treatment are in full force. He wakes up and is active for a few minutes at a time, then asks to return to bed shortly thereafter. The next big treatment for him will occur on Friday, March 25th. I will post updates as…
10:50 pm: All things considered: Today was a really great day. We learned two very important things. 1. Harvey’s body is responding to the treatments favorably and as expected thus far. If I pretend like I know what I’m talking about for just a moment, I recall hearing that some of the proteins found (around one of the types of…
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