Day 60 – May 17, 2022
5:45 pm: Harvey had another routine procedure today. Each one breaks my heart and is difficult. It never feels routine even with our amazing care team. Here is a look into today’s procedure and a glimpse of Harvey’s new normal.
Day 53 – May 10, 2022
3:45 pm: We’ve arrived back home! Today certainly lived up to all the hype. Ugh! Harvey had and continues having mild reactions to the 100 ml of pegaspargase he received. Nausea and rashes have certainly been problematic, but thankfully didn’t prevent him from receiving today’s full dose. He will receive one more round weeks from now (and we are also…
Day 46 – May 3, 2022
11:00 pm: Harvey’s procedure went well today. He was put to sleep (thanks, propofol!) and had chemotherapy administered intrathecally at 8:30 am. Typically, he’s only asleep for about 15-30 minutes, but wakes up with another battle wound on his back. This afternoon was the first time he’s complained of back pain and he now has medication onboard for pain management….
Day 45 – May 2, 2022
11:30 pm: Happy May! Today marks the first full week of Harvey’s consolidation stage of cancer treatment. Each day has started to feel more monotonous than the next: Scheduled medications, personal care, appointments, and cold/rainy weather. We’ve been mindful of trying to introduce new activities, games, and ways to stay active to keep this all (somewhat) exciting for Harvey. But…
Day 41 – April 28, 2022
7:00 pm: We are now 3 days into Harvey’s consolidation phase of cancer treatment. He is receiving 3 different chemotherapy medicines per day (consisting of 9 pills and 1 infusion) as well as medicine for nausea and elevated blood pressure. With the help of a daily in-home nurse visit, this full gamut of medications can be given right at home….
Day 39 – April 26, 2022
10:30 am: Harvey is awake after his spinal tap procedure. He is now getting hooked up for his next dose of chemotherapy. I took a few pictures and videos of what these visits look like for us behind the scenes. 8:40 am: We’ve arrived at the clinic. Harvey is in his procedure room preparing to receive a spinal tap and…
Day 38 – April 25, 2022
6:30 pm: Today was supposed to be Harvey’s first official day of the consolidation phase of treatment. For some reason, our scheduled procedure for this morning was canceled over the weekend. We instead met with physical therapy to focus on regaining strength lost from the first rounds of treatment (induction). We then reviewed latest blood results with Dr. Miller. Harvey’s…
Day 35 – April 22, 2022
10:30 pm: Harvey’s morning appointment went well. His ANC level rose to .500, up from Wednesday’s reading of .160. An ANC of .750 is required to continue his treatment and his medical team is confident he’ll continue trending up over the weekend and will reach .750 by Monday. Therefore, his next procedure is scheduled for 7:30 am Monday morning and…
Day 33 – April 20, 2022
7:15 pm: Now that Harvey’s induction phase of treatment is officially done and we have full bone marrow test results, we are preparing to begin his consolidation phase of treatment. Today, we met with Harvey’s care team to get labs drawn and discuss his specific treatment plan for consolidation, which will include the drug ruxolitinib. In (sort of) layman’s terms,…
Day 32 – April 19, 2022
7:45 pm: Harvey simply amazes me. He is solution-minded and logical. He absolutely HATES taking numerous crushed pills orally every day because, without a doubt, they have a horrible taste! After a quick discussion with mom this morning, he learned that it’s possible to swallow them whole without tasting them. And that’s all he needed to know. As of today,…
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