9:00 pm: Here we are on the eve of the next round of consolidation chemotherapy. On Tuesday, Harvey’s labs were drawn and the results show his immune system, while still very weak, is strong enough to continue the next round of aggressive treatment. This next round begins tomorrow morning at 10 am, is 4 weeks in length, and will end…
9:00 pm: “Why did I get cancer?” Lindsey tearfully shared with me Harvey’s question for his mom yesterday. Explaining that we don’t know why hardly feels acceptable. It’s now 70 days since his world forever changed. His next round of cancer treatment was scheduled to begin today, but his body remains too weak and immunocompromised to continue. He’ll be reassessed…
6:10 pm: While cleaning up Harvey’s dishes from supper tonight, I heard him washing his hands in the bathroom and singing Lady Gaga’s “Bad Romance.” We’re never lacking entertainment in this house! ❤️ 3:50 pm: Harvey has arrived back home from the hospital! Returning home this morning was dependent upon our family testing negative for COVID: We all did! His…
7:45 pm: Good evening from the hospital. We’re on day 5 since admission and Harvey is doing well. He had been receiving cefepime (antibiotic) until this morning to help ward off infection, has remained fever-free, and his ANC climbed to .322 this morning, up from .220 yesterday. We are trending the right direction and hope to return home in the…
11:00 pm: Harvey was up early today (4:30 am) and was active up until his 3-hour nap from 2 to 5 pm. His ANC level is thankfully starting to trend upward. It’s now .182, up from .120 yesterday. We will remain in the hospital until his immune system recovers a bit more. He’s feeling well, eating decent portions, and actively…
1:55 pm: Boring is never a word we use much in our family. Today is a perfect case in point. Harvey and I (dad) are camping out in our hospital room, passing the time as we wait for his blood cultures to return and ANC levels to rise. He received a blood transfusion this morning due to low hemoglobin levels…
10:00 pm: Harvey is sleeping peacefully in his hospital bed after a (mostly) quiet Wednesday. The worst part of his day was when they accessed his port. They stick a 22 gauge needle through his skin and into his port. It hurts. 🙁 He dislikes it to the point that he asks me every morning after waking up at home,…
5:45 pm: Harvey had another routine procedure today. Each one breaks my heart and is difficult. It never feels routine even with our amazing care team. Here is a look into today’s procedure and a glimpse of Harvey’s new normal.
3:45 pm: We’ve arrived back home! Today certainly lived up to all the hype. Ugh! Harvey had and continues having mild reactions to the 100 ml of pegaspargase he received. Nausea and rashes have certainly been problematic, but thankfully didn’t prevent him from receiving today’s full dose. He will receive one more round weeks from now (and we are also…
11:00 pm: Harvey’s procedure went well today. He was put to sleep (thanks, propofol!) and had chemotherapy administered intrathecally at 8:30 am. Typically, he’s only asleep for about 15-30 minutes, but wakes up with another battle wound on his back. This afternoon was the first time he’s complained of back pain and he now has medication onboard for pain management….
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