7:45 pm: Harvey’s current hospital stay is coming to an end! We’re preparing to get discharged in the next few hours. His body has been clearing the high-dose chemotherapy (methotrexate) nicely. He did have a few rounds of vomiting and was a bit reluctant to eat, but both symptoms are considered standard side effects. I want to share one of…
1:30 pm: We took a celebratory hiatus from blog updates this past week. July 19th will forever be a cherished family holiday. “Harvey is in remission!” These words are such an incredible gift. Thank you so much for your love and support throughout the highs and lows over the past 132 days! We have so many thank-yous to send out…
11:10 am: At 10:15 am, we received the call that we’ve been anticipating since Harvey’s leukemia diagnosis on March 18th: Harvey’s bone marrow is MRD negative. He is in remission!! I don’t have words to describe the emotions provoking the tears flooding my eyes right now. For the past 123 days, we weren’t sure if we’d ever hear these words….
3:15 pm: Harvey’s third (and second) day in the hospital have been quiet and all is well. The boy is happy, entertained, and having no side effects (except frequent trips to the bathroom from all the chemotherapy and liquids being pushed into his port). He finished his high dose methotrexate infusion at 3 pm yesterday and his body has been…
10:00 pm: Thank you so much for your comments of love & support today – We love sharing them with Harvey while he’s going through treatment! ❤️ He had a few rounds of vomiting late morning and early afternoon, but otherwise everything has been going well. He is currently receiving a continuous 22 hour infusion of methotrexate and will be…
9:30 pm: The past week has been a blur. Harvey made it through his first round of rylaze injections, receiving his last on Wednesday, July 6th (8 shots total over 2 weeks). It was rough. He lost over 2 pounds from vomiting and lack of appetite. He either couldn’t sleep due to nausea or exclusively slept the days he was…
11:30 pm: A sleepless night is underway for Harvey with bouts of vomiting followed by acute, short-lived migraines in one to two hour intervals. After throwing up, he immediately grabs his head and cries from migraine pain for 10-20 seconds. (His care team believes this is due to blood pressure spikes while vomiting, enhanced by his low red blood cell…
7:00 pm: 100 days. It’s been 100 days since Harvey’s cancer diagnosis. It feels longer than that. Yet, it also feels like no time at all compared to the road that lies ahead. I’m glancing at Harvey as I type these words. He’s across the room playing with his train set. His cute, bald head, pale skin, bruises, and leg…
9:30 pm: We’re home! I’m practically running around singing it! 🙂 Harvey’s lab results showed his white blood cell count and ANC (immune system) have both dropped, likely due to chemotherapy. However, everything else looks good. At least good enough to go home! Our boy had a very long day and is just catching up on the lunch and dinner…
11:00 pm: A brief update to share that we’ve had a quiet, yet busy week at home. Harvey will begin receiving the first of numerous rounds of rylaze shots tomorrow, June 24th. He’ll also soon begin his next round of aggressive cancer treatment, including scheduled hospitalizations. I’ll post a much more detailed entry in the coming days about what Harvey’s…
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