11:30 pm: A sleepless night is underway for Harvey with bouts of vomiting followed by acute, short-lived migraines in one to two hour intervals. After throwing up, he immediately grabs his head and cries from migraine pain for 10-20 seconds. (His care team believes this is due to blood pressure spikes while vomiting, enhanced by his low red blood cell…
7:00 pm: 100 days. It’s been 100 days since Harvey’s cancer diagnosis. It feels longer than that. Yet, it also feels like no time at all compared to the road that lies ahead. I’m glancing at Harvey as I type these words. He’s across the room playing with his train set. His cute, bald head, pale skin, bruises, and leg…
9:30 pm: We’re home! I’m practically running around singing it! 🙂 Harvey’s lab results showed his white blood cell count and ANC (immune system) have both dropped, likely due to chemotherapy. However, everything else looks good. At least good enough to go home! Our boy had a very long day and is just catching up on the lunch and dinner…
11:00 pm: A brief update to share that we’ve had a quiet, yet busy week at home. Harvey will begin receiving the first of numerous rounds of rylaze shots tomorrow, June 24th. He’ll also soon begin his next round of aggressive cancer treatment, including scheduled hospitalizations. I’ll post a much more detailed entry in the coming days about what Harvey’s…
7:30 pm: We’re all back at home and ready to celebrate sunset. We hope for less days like today. Harvey had a full-blown allergic reaction to his pegaspargase chemotherapy. It started with Lindsey noticing red spots developing on his ears, then hives on his nose, followed by the swelling of his entire face. He then signaled that the swelling was…
11:30 pm: We’ve taken a brief hiatus in site updates as it’s remained quiet around here. To be clear, not quiet as in “silent.” Medically quiet. Harvey has been doing well. He is now solidly in the second week of the second half of the second stage of cancer treatment. Easy to follow, right? 🙂 Simply put, he’s started his…
10:00 pm: Harvey’s clinic visit for chemotherapy today was apparently the first stop on his stand-up comedy tour! We love our little comedian. Chemotherapy really wore him out. Within an hour of receiving his cytoxan and ARA-C, he was an entirely different kid. His agility, energy, alertness, focus: Gone. He’s also returned to his daily oral chemotherapy regimen at home….
9:00 pm: Here we are on the eve of the next round of consolidation chemotherapy. On Tuesday, Harvey’s labs were drawn and the results show his immune system, while still very weak, is strong enough to continue the next round of aggressive treatment. This next round begins tomorrow morning at 10 am, is 4 weeks in length, and will end…
9:00 pm: “Why did I get cancer?” Lindsey tearfully shared with me Harvey’s question for his mom yesterday. Explaining that we don’t know why hardly feels acceptable. It’s now 70 days since his world forever changed. His next round of cancer treatment was scheduled to begin today, but his body remains too weak and immunocompromised to continue. He’ll be reassessed…
6:10 pm: While cleaning up Harvey’s dishes from supper tonight, I heard him washing his hands in the bathroom and singing Lady Gaga’s “Bad Romance.” We’re never lacking entertainment in this house! ❤️ 3:50 pm: Harvey has arrived back home from the hospital! Returning home this morning was dependent upon our family testing negative for COVID: We all did! His…
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