Harvey spent 14.5 hours at the Children’s Hospital of Philadelphia (CHOP) clinic the past 2 days receiving chemotherapy (fludarabine and cyclophosphamide) while playing his new-found favorite Xbox racing games. This is the first time he’s had fludarabine and we didn’t know what side effects to expect. Thankfully he’s had no nausea but was definitely more tired today. His immune system…
Hello (again) from Philadelphia! We said our tearful goodbyes to Hattie and Henry on Thursday morning (and grandpa & grandma Goldade who graciously offered to stay with them while we’re away) and we arrived late Thursday night via a flight provided by the Corporate Angel Network. (What an amazing experience – Thank you so much! We’d planned on driving 20…
Happy Thanksgiving! We are immensely grateful to be together as a family today, especially since we’ve learned we won’t be spending Christmas together this year. On Friday, CHOP (Children’s Hospital of Philadelphia) called to inform us that Harvey will need to return to Philly on Dec. 11th to prepare his body for CAR T therapy with the actual T cell…
We returned home from Philadelphia, PA, on Thursday, November 9th, the day after our last update. Harvey had a successful T cell collection, and we are currently awaiting a callback to return to Children’s Hospital of Philadelphia (CHOP) in the next 4-6 weeks. When Harvey returns, it will mark the beginning of his actual CAR T therapy, and he’ll receive…
Good morning from Philadelphia, PA! Today marks exactly 600 days since Harvey’s initial leukemia diagnosis. March 18th, 2022 feels like an eternity ago, but Harvey’s recent relapse brought back the same emotions from that very first day. The preceding 599 days of treatment proved unsuccessful. So on this 600th day, an entirely new treatment plan begins 1,000 miles east from…
Happy 6th birthday, Harvey! What an amazing gift you are to your family & friends. We are inexplicably proud of you and thankful for you. Always know that we love you so much! In keeping with tradition, we want to share a video that highlights your amazing fifth year. A year that brought challenges no child should have to bear….
The short version: On October 5th, 2023, we learned that Harvey’s cancer returned. The truth is, it likely never went away. His chemotherapy and treatment plan for the past 18 months simply didn’t work, and the cancer spread to his spinal fluid. We’re devastated and heartbroken, furious at the universe, and feeling lost. Only days ago, we found out what…
Exactly 1 year ago today, Harvey received his cancer diagnosis. Wow. It feels so much longer than 365 days ago. Yet, what an accomplishment – especially when we were living moment to moment, not knowing what each next day would bring. (Right on cue Hattie, Harvey’s sister, tested positive for COVID during the authoring of this update.) Today our warrior…
2:45 pm: Today marks the beginning of another chapter for Harvey in his cancer fight. The last stage of planned cancer treatment, maintenance, started this morning at 7:45. (Mom is with Harvey at the cancer clinic as I type this.) This stage will be the longest by far, spanning at least 2.5 years and is expected to conclude in the…
11:25 pm: This update should’ve started off with “Christmas is right around the corner…” or “As we head into the new year…” But here we are. It’s been over a month since our last update and today marks 300 days since Harvey’s diagnosis. Without further ado: Medically, Harvey continues pushing bravely through cancer treatments in the interim maintenance 2 stage….
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