4:00 pm: Since our last update, we’ve had some wonderful time with our energetic, happy boy during downtime between his cancer treatment stages. Harvey wrapped up his interim maintenance stage on September 7th, and started chemotherapy to kickoff the delayed intensification stage yesterday morning at 7:45 am. Here’s where he’s at on his treatment roadmap: Over the past 2 weeks,…
6:00 pm: Yesterday was truly a gift: We had our first family outing together in over 6 months! Our destination was the city splash pad in Princeton, MN. (We were able to rent it privately for 2 hours.) Something we considered so ordinary months ago feels amazingly extraordinary for us now. Harvey continues to be playful, active, and healthy at…
9:30 pm: We returned to the hospital this morning for Harvey’s last scheduled inpatient stay (for now). This evening, I type these words from the very hospital room that we first occupied on the day Harvey was diagnosed with cancer. Everything has changed since then. The light coming in through our south-facing windows this evening illuminates the couch we sat…
9:00 pm: Harvey returned to the hospital this morning for scheduled inpatient chemotherapy (high-dose methotrexate). The past 12 days since our last update have been wonderfully uneventful, medically speaking. He’s remained healthy and at home – We’re so grateful for this! We continue navigating the fine line between keeping our immunocompromised boy healthy and letting him do all the things…
7:45 pm: Harvey’s current hospital stay is coming to an end! We’re preparing to get discharged in the next few hours. His body has been clearing the high-dose chemotherapy (methotrexate) nicely. He did have a few rounds of vomiting and was a bit reluctant to eat, but both symptoms are considered standard side effects. I want to share one of…
1:30 pm: We took a celebratory hiatus from blog updates this past week. July 19th will forever be a cherished family holiday. “Harvey is in remission!” These words are such an incredible gift. Thank you so much for your love and support throughout the highs and lows over the past 132 days! We have so many thank-yous to send out…
11:10 am: At 10:15 am, we received the call that we’ve been anticipating since Harvey’s leukemia diagnosis on March 18th: Harvey’s bone marrow is MRD negative. He is in remission!! I don’t have words to describe the emotions provoking the tears flooding my eyes right now. For the past 123 days, we weren’t sure if we’d ever hear these words….
3:15 pm: Harvey’s third (and second) day in the hospital have been quiet and all is well. The boy is happy, entertained, and having no side effects (except frequent trips to the bathroom from all the chemotherapy and liquids being pushed into his port). He finished his high dose methotrexate infusion at 3 pm yesterday and his body has been…
10:00 pm: Thank you so much for your comments of love & support today – We love sharing them with Harvey while he’s going through treatment! ❤️ He had a few rounds of vomiting late morning and early afternoon, but otherwise everything has been going well. He is currently receiving a continuous 22 hour infusion of methotrexate and will be…
9:30 pm: The past week has been a blur. Harvey made it through his first round of rylaze injections, receiving his last on Wednesday, July 6th (8 shots total over 2 weeks). It was rough. He lost over 2 pounds from vomiting and lack of appetite. He either couldn’t sleep due to nausea or exclusively slept the days he was…
End of content
End of content
