10:20 pm: Our family is back under one roof! Hattie, Henry, and Lindsey returned back home on Sunday morning after Hattie finished fighting off the flu. Everyone is happy to be home and healthy! Harvey’s immune system has been slowly recovering this past week. On Wednesday, his home health care nurse came by to collect a blood sample. His ANC…
4:50 pm: Happy Thanksgiving! We are so thankful that Harvey is home and healthy today. We didn’t know if we would have our boy home for Thanksgiving this year. On Wednesday, Nov. 16th, Harvey needed a blood transfusion after his hemoglobin took a nose dive. He had become tired, nauseous, and uncomfortable from the (perhaps most difficult round so far…
8:50 pm: I intended to post an update nearly a week ago. We’ve had quite a busy beginning to November. First: Thank you so much to all our family and friends that helped make Harvey’s 5th birthday an amazing experience for him! He had a memorable Minecraft-themed birthday party at home with so many presents, his favorite foods, a piñata…
9:57 am: Happy birthday, Harvey!! At this very moment, our warrior is now 5 years old. We’ll be offline today while we celebrate everything Harvey and will follow up with a full health and birthday update later tonight. Here’s a look back at some of the moments over the past 5 years that we’ll forever cherish.
10:40 am: Harv is awake again after his morning procedure and is nauseous/vomiting. He’s feeling pretty tough, but glad to be done with everything for the day. We should be back on the road to home before noon. Thank you so much for the kind messages this morning! We certainly haven’t felt alone in this fight. ❤️ 6:30 am: We’re…
7:20 pm: It’s been an entire month since our last update: 30 days of ups and downs throughout the first round of Harvey’s delayed intensification stage of treatment. The oral steroids (dexamethasone) have been brutal. Harvey has been ravenous all hours of the day and night. Third lunches. Midnight feasts. No amount of food made our boy feel full. He…
4:00 pm: Since our last update, we’ve had some wonderful time with our energetic, happy boy during downtime between his cancer treatment stages. Harvey wrapped up his interim maintenance stage on September 7th, and started chemotherapy to kickoff the delayed intensification stage yesterday morning at 7:45 am. Here’s where he’s at on his treatment roadmap: Over the past 2 weeks,…
6:00 pm: Yesterday was truly a gift: We had our first family outing together in over 6 months! Our destination was the city splash pad in Princeton, MN. (We were able to rent it privately for 2 hours.) Something we considered so ordinary months ago feels amazingly extraordinary for us now. Harvey continues to be playful, active, and healthy at…
9:30 pm: We returned to the hospital this morning for Harvey’s last scheduled inpatient stay (for now). This evening, I type these words from the very hospital room that we first occupied on the day Harvey was diagnosed with cancer. Everything has changed since then. The light coming in through our south-facing windows this evening illuminates the couch we sat…
9:00 pm: Harvey returned to the hospital this morning for scheduled inpatient chemotherapy (high-dose methotrexate). The past 12 days since our last update have been wonderfully uneventful, medically speaking. He’s remained healthy and at home – We’re so grateful for this! We continue navigating the fine line between keeping our immunocompromised boy healthy and letting him do all the things…
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